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Type: Journal article
Title: How social media data are being used to research the experience of mourning: A scoping review
Author: Muller Spiti, J.
Davies, E.
McLiesh, P.
Kelly, J.
Citation: PLoS One, 2022; 17(7):e0271034-1-e0271034-25
Publisher: Public Library of Science (PLoS)
Issue Date: 2022
ISSN: 1932-6203
Statement of
Julia Muller Spiti, Ellen Davies, Paul McLiesh, Janet Kelly
Abstract: Background: Increasingly, people are using social media (SM) to express grief, and researchers are using this data to investigate the phenomenon of mourning. As this research progresses, it is important to understand how studies are being conducted and how authors are approaching ethical challenges related to SM data. Objective: The aim of this review was to explore how SM data are being used to research experiences of mourning through the following questions: a) ‘Which topics related to mourning are being studied?’; b) ‘What study designs have been used to analyse SM data’; c) ‘What type of data (natural or generated) have been used?’; and d) ‘How are ethical decisions being considered?’. Methods: The JBI Scoping Review methodology guided this review. Eligibility criteria were determined using the PCC framework, and relevant key words and phrases derived from these criteria were used to search eight databases in September 2021 (CINAHL, Embase, LILACS, OpenGrey, ProQuest, PsycINFO, PubMed and Scopus). The Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) guidelines were used to report the results of this review. Results: Database searches resulted in 3418 records, of which, 89 met eligibility criteria. Four categories of grief and mourning were identified. Most records were qualitative in nature and used natural data. Only 20% of records reported ethics approval by an Institutional Review Board, with several including measures to protect participants, for example, using pseudonyms. Conclusions: This unique review mapped the diverse range of mourning-related topics that have been investigated using SM data and highlighted the variability in approaches to data analysis. Ethical concerns relating to SM data collection are identified and discussed. This is an emerging and rapidly changing field of research that offers new opportunities and challenges for exploring the phenomenon of mourning.
Keywords: Social media
Description: Published: July 22, 2022
Rights: Copyright: © 2022 Spiti et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
DOI: 10.1371/journal.pone.0271034
Appears in Collections:Nursing publications

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