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Type: Journal article
Title: Information and support for women following the primary treatment of breast cancer
Author: Raupach, J.
Hiller, J.
Citation: Health Expectations, 2002; 5(4):289-301
Publisher: Blackwell Science Ltd.
Issue Date: 2002
ISSN: 1369-6513
Statement of
Jane C. A. Raupach and Janet E. Hiller
Abstract: Objective To examine the need for, use of and satisfaction with information and support following primary treatment of breast cancer. Design Cross-sectional survey. Participants Cohort of 266 surviving women diagnosed with breast cancer over a 25-month period at a tertiary hospital, Adelaide, Australia. Time since diagnosis ranged from 6 to 30 months. Main outcome measures Need for, use of and satisfaction with information and support. Results Women reported high levels of need for information about a variety of issues following breast cancer treatment. Ninety-four percentage reported a high level of need for information about one or more issues, particularly recognizing a recurrence, chances of cure and risk to family members of breast cancer. However, few women (2–32%) reported receiving such information. The most frequently used source of information was the surgeon followed by television, newspapers and books. The most frequently used source of support was family followed by friends and the surgeon. Few women (<7%) used formal support services or the Internet. Women were very satisfied with the information and support that they received from the surgeon and other health professionals but reported receiving decreasing amounts of information and support from them over time. Conclusions Women experience a high need for information about breast cancer related issues following primary treatment of breast cancer. These needs remain largely unmet as few women receive information about issues that concern them. The role of the surgeon and other health professionals is critical in narrowing the gap between needing and receiving information.
Keywords: Humans
Breast Neoplasms
Cohort Studies
Cross-Sectional Studies
Social Support
Needs Assessment
Information Services
Middle Aged
Health Services Research
National Health Programs
Patient Satisfaction
South Australia
Patient Education as Topic
Description: The definitive version is available at
DOI: 10.1046/j.1369-6513.2002.00191.x
Appears in Collections:Aurora harvest
Public Health publications

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