Please use this identifier to cite or link to this item:
https://hdl.handle.net/2440/58622
Citations | ||
Scopus | Web of Science® | Altmetric |
---|---|---|
?
|
?
|
Type: | Journal article |
Title: | What's in a name? Searching the web for information about ethically contentious and emerging healthcare technologies |
Author: | Axler, R. Strong, K. Jordens, C. Ankeny, R. Barlow-Stewart, K. Kerridge, I. |
Citation: | Journal of Communication in Healthcare, 2009; 2(2):173-183 |
Publisher: | Maney Publishing |
Issue Date: | 2009 |
ISSN: | 1753-8068 1753-8076 |
Statement of Responsibility: | Renata E. Axler, Kimberly A. Strong, Christopher F. C. Jordens, Rachel A. Ankeny, Kristine Barlow-Stewart and Ian H. Kerridge |
Abstract: | This study examined the problems faced by lay people searching the web for information about emerging and ethically contentious technologies, by simulating a web search for information about creating a matched sibling donor for a bone marrow transplant (sometimes termed a ‘saviour sibling’). Five search terms related to the use of this technology were inserted into the top four search engines using well-recognised search strategies. The first page of results in each of the search engines was analysed. The study found little information available online about the creation of a ‘saviour sibling’. The nature of the information clearly depended on the choice of search term and varied significantly in terms of its scientific content, consumer guidance and value bias. Complete and comprehensive information about this means of securing a transplant donor cannot be accessed via a typical web search. In addition to providing information about creation of a ‘saviour sibling’, clinicians should also provide a description of the adequacy and limitations of web resources on this topic and guidance as to appropriate information-seeking strategies. |
Keywords: | saviour sibling, preimplantation genetic diagnosis, HLA tissue typing, web search, sibling transplant, doctor/patient communication, decision-making |
Rights: | Copyright of Journal of Communication in Healthcare is the property of Henry Stewart Publications LLP |
DOI: | 10.1179/cih.2009.2.2.173 |
Published version: | http://dx.doi.org/10.1179/cih.2009.2.2.173 |
Appears in Collections: | Aurora harvest 5 History publications |
Files in This Item:
There are no files associated with this item.
Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.