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https://hdl.handle.net/2440/139976
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Type: | Journal article |
Title: | Validity of the PROMIS-29 in a large Australian cohort of patients with systemic sclerosis |
Author: | Morrisroe, K. Stevens, W. Huq, M. Sahhar, J. Ngian, G.S. Zochling, J. Roddy, J. Proudman, S. Nikpour, M. Hill, C. Lester, S. Nash, P. Rischmueller, M. Strickland, G. Thakkar, V. Walker, J. |
Citation: | Journal of Scleroderma and Related Disorders, 2017; 2(3):188-195 |
Publisher: | Sage |
Issue Date: | 2017 |
ISSN: | 2397-1983 2397-1991 |
Statement of Responsibility: | Kathleen Morrisroe, Wendy Stevens, Molla Huq, Joanne Sahhar, Gene-Siew Ngian, Jane Zochling, Janet Roddy, the Australian Scleroderma Interest Group, ASIG, Susanna Proudman, Mandana Nikpour |
Abstract: | Background: We aimed to evaluate the construct validity of the Patient-Reported Outcomes Measurement Information System 29 (PROMIS-29) in Australian systemic sclerosis (SSc) patients. Methods: SSc patients, identified through the Australian Scleroderma Cohort Study database, completed two quality-of-life instruments concurrently, the PROMIS-29 and the Medical Outcomes Study 36-Item Short Form Health Survey (SF-36). The construct validity of the PROMIS-29 was assessed by the correlations between the PROMIS-29 and the SF-36 and Health Assessment Questionnaire Disability Index (HAQ-DI). Cronbach’s alpha was used to test the internal reliability of all instruments in Australian SSc patients and non-parametric correlation, including Spearman’s correlation, was used to test the construct validity of PROMIS-29 against the SF-36 and HAQ-DI. Results: A total of 477 completed questionnaires were returned, equating to a response rate of 59.6%. The mean (±SD) age of respondents at the time of the survey was 64.1 (±11.1) years. They were predominantly female (87.4%), with limited disease subtype (lcSSc) (77.8%) and long disease duration from onset of first non-Raynaud’s phenomenon symptom at the time of survey (10.9 ± 11.1 years). For the correlation analysis between the PROMIS-29 and the legacy instruments, all Spearman correlation coefficients were in the logical direction and highly significant suggesting that the PROMIS-29 is a good alternative to other validated measures of disease burden. Conclusions: Our study indicates that the PROMIS-29 questionnaire is a valid instrument for measuring health related quality of life in Australian females with lcSSc of long duration. |
Keywords: | Construct validity; Health related quality of life; Patient reported outcomes measures; Scleroderma; Systemic sclerosis |
Rights: | © 2017 Wichtig International. |
DOI: | 10.5301/jsrd.5000243 |
Grant ID: | http://purl.org/au-research/grants/nhmrc/1113954 http://purl.org/au-research/grants/nhmrc/1071735 |
Published version: | http://dx.doi.org/10.5301/jsrd.5000243 |
Appears in Collections: | Medicine publications |
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